I’ve spent half of today wondering if I should show a semi-naked picture of me to facebook and twitter. It is of my (annoyingly, still, 6 weeks on) not-healing/open-wound post-mastectomy ‘breast’. (It’s not a breast, it’s some stomach tissue and some stomach skin and some not-coping-original breast skin – not coping because it had radiotherapy during my last breast cancer – re-modelled into a ‘breast’ shape, it’s most definitely not an actual breast.)
I thought it might be a kind of punctuation mark in the idea of what, exactly, ‘raises awareness’.
I took a bunch of pictures, they’re very ugly, we’re not used to flesh looking open and raw and red and … yellow. ANYWAY, I didn’t post them, partly because I knew that if I did post them, I would feel very exposed and vulnerable and tonight, 41 days, not quite 6 weeks since my surgery, I was hosting Stonewall‘s annual fundraising dinner. And I needed to feel brave because Stonewall’s issues and causes were bigger than my own personal twitter and facebook furies today. (Sometimes they align, not always.)
It’s the big one, it’s at the Dorchester, it’s dead flash, it really matters because it raises money for loads of vital work … and it still terrifies me, even though tonight was the third time I’ve hosted it, because it’s so very LIVE. And stuff happens, it changes.
It changes as the night progresses, as it should.
Tonight Christopher Biggins proved what an utter star he is as he totally flew with about a dozen gay women from all spheres of UK life (many of them telly-famous, + the likes of me) combined, utterly live, non-planned, auctioning themselves to make/serve and host a dinner. At Mary Portas’ place. Cooked by Allegra McEvedy and Jack Monroe. In one fell swoop it raised £23.5k. (And I promised myself as a waitress. I am a rubbish waitress.)
So, today I didn’t post a pic of my still-unhealed breast wound. In truth, I still think it is far more likely to provoke breast-cancer-awareness than any amount of non-cancerous women showing themselves without makeup (and if we do want to address that massive issue, the makeup one, a proper issue, all by itself, that needs its own awareness campaign, I’m totally there, it’s about bloody time, eh, feminism?, but I’d rather not conflate the two) … so I will post this one instead.
It’s what we looked like, having ‘auctioned’ ourselves for Stonewall.
It’s what making a difference in workplaces and schools and care homes ALSO looks like.
Because that’s what the money raised goes to. Yes, it’s great to be able to get married, I want to, I’m glad to, but the legislative part of Stonewall is a very small part of the overall work it does.
And meanwhile, from the personal pov, … sometimes it IS what you look like, on top, that matters most, that can make a difference. Not how scared, shy, worried, upset, vulnerable you feel underneath. How scared, shy, worried, upset, vulnerable I feel underneath.
Because we ALL feel those things underneath, all the time. I promise you.
Right now, when my own skin is failing to heal, failing to protect, I feel it more than ever before. I feel the rawness of my humanity, right on the top of my bones, like an actual feeling, one I have no words for.
Tonight, I put on my ‘brave’ mask, and I did the (volunteer, obv) work that was asked of me, work I had agreed to do before I was diagnosed – to support and promote a cause and an organisation I care about, passionately.
Tonight, dressing up, and wearing makeup, standing up and improvising my script in front of 550 people, was far braver than a photo of a bare-faced me.
Because I was standing scared – and standing anyway.
And here’s Stonewall’s immensely powerful new campaign – linking ALL bullying, vitally acknowledging that all prejudice is part of a continuum, and we need to fix it ALL, not just our own bit of it. No Bystanders
Right then, back to changing the world with Fun Palaces.
This is what the women who spontaneously came together to create an un-organised auctionable ‘lot’ looked like after the bidding. (Shocked – and delighted- that anyone would pay that money for that rabble!)
This morning I was also taking pictures of, in my case, my unhealed right breast with lumpectomy cavity. I was also thinking of Facebook and Twitter for my photos but there are many women with similar evidence of the treatment they have been through and similar pictures can be seen on the Internet already, on breast surgeon’s sites. I decided instead to do lots of cooking for a friend who has been ill. When the time is right those photos will be out there raising awareness.
Yes yes yes!!! Deeds not words. Perfect.
Excellent, and so fitting. Thank you for putting this into words, when so many are not able to do it. And when so many are bewildered by the emptiness of words & images shared on social media in the name of breast cancer awareness. As you say … actions speak louder. Well done, & hope all goes well! X
thank you Linda.
I read you had hosted the fundraiser. Incredibly brave of you and I was concerned it may be too soon. Standing there and doing your thing for the great work of Stonewall proves that women can have the strength of character to face up to such adversity and still raise awareness without laying themselves bare. You were right not to post the pictures, you don’t need to make yourself vulnerable to achieve your objective. You do it by just being you. Stay strong and true
thank you Anne.
I was alerted to your recent experiences and thoughts on breast cancer awareness by my youngest daughter, who frequently reads your blogs.
I found a large lump in my left breast (that had seemingly appeared overnight) on morning of Christmas Day 2010 – kept quiet about it for the four days’ holiday as I had all the family for Christmas and didn’t want to spoil the occasion……… more or less knew what was wrong as I work in the field of pathology. Subsequently had chemo, surgery, radiotherapy, biological therapies, etc. Eventually emerged as a battered and bald version of my former self with one weird (smaller and wonky) and one normal breast, and loss of sensation in soles of feet and fingertips as a side effect of chemo.
At my lowest point, could hardly move at all but could just see patches of wonderful blue sky from the window near my bed. I determined that on recovery I would not look back but make the most of each day and I made a be-wigged return to work after 4 months. With my wig,and plenty of make-up, I felt confident and ready to face the world. (‘Deeds not words’ – and throw in some additional voluntary work for the N.H.S.)
I dare say these days, with my once lustrous locks replaced by a shock of frothy ‘chemo hair’ and my full-on make-up, some may think it is a little too much for a 63 year old ……….. but it’s my life and it pleases me to enjoy it and get on with it and NEVER to go out bare-faced. So I wholeheartedly agree with your sentiments.
Anyway – it’s not about me but a message of love and encouragement to all who find themselves in a similar situation – and to let you know, Stella, that I’m thinking of you, wish you a speedy recovery and continued success in all your ventures.
Jenny! I’m so sorry to hear this, and yay you for coming through to the other side (I figure I’ve done it once 14 years ago, I’ll do it again …), and god yes for making ourselevs up (or not) as it pleases us, whatever age, but especially post-disease.
huge love to you. xxx